I’m wondering if the Palliative Care Association could respond to …

Comment on Local palliative care lobby gets its way after long campaign by Anon.

I’m wondering if the Palliative Care Association could respond to my description of the palliative “care” my father received at the end of his life.
Specifically, is death by induced heart attack on the cards for our old folk and us at the new hospice?
If it is what is the level of information provided to relatives beforehand and is their consent sought?

Anon Also Commented

Local palliative care lobby gets its way after long campaign
Sandra Clyne: If the palliative care unit is engaged in practices that they absolutely cannot talk about then perhaps consideration should be given to either opening them to public discussion or discontinuing them.
To remain silent can only damage public perception of palliative care.


Local palliative care lobby gets its way after long campaign
In my opinion the continued silence from the Palliative Care Association is disturbing.
Surely the Chief Minister should also be concerned and encouraging the association to make a public statement.
After all the hospice is jointly funded by the Commonwealth ($5.3m) and Northern Territory Government ($1m).
Surely there are standards of openness, transparency, consent, rights of patients and relatives and legalities incumbent on all organisations and especially when we fund them.
The Palliative Care Association needs to generate a comprehensive and clear public statement that will reassure Territorians.
In my opinion if they cannot or will not do that then the Chief Minister must order an enquiry.


Local palliative care lobby gets its way after long campaign
@ Evelyn. Looks like we won’t be getting a response from the Palliative Care Association.
The problem I have with the palliative treatment my father received in a nursing home in Adelaide is he may have suffered unnecessarily by being deliberately dehydrated for several days before his death.
He could have been in great pain but unable to cry out because of the effects of dehydration on the elderly combined with morphine.
His was certainly not a quick death, the process lasted several days.
My strong preference would have been for him to be cared for until he died naturally, with pain killers and sedatives administered as needed.
That’s the manner of death that I believe is dignified.
To achieve that for him I would have needed to see through the facade of a feeble, semi-conscious old man attended to by palliative care workers, with soft music playing and a picture of my mother at the foot of his bed.


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My drone flying friends say that not finding Monika is a disgrace.
Forget the old tech ground searches.
Fly the latest high tech drones equipped with high-resolution cameras or video and analyse the results.
She would have been found on day two after being reported missing.
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James, I suspect that remote community infrastructure does add to the NT’s revenue stream, as it always has. Case in point (admittedly dated):
Federal grant of $500,000 for remote preschool.
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Old asbestos clad science block sent to the community (instead of dumping it}.
Over the next three months, Alice Springs tradies renovate the building.
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Gunner has made the right call on the location of the proposed gallery and offered substantial funding.
No other sensible and economically viable location has been proposed.
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To be sustainable the loss must be minimised and it must add value to our tourist businesses.
South of the Gap / at the Desert Part are not suitable locations.
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Eugene’s Mate: “Unreasonably negative and incorrigibly antagonistic attitude towards Congress pathological denial of Congress’s achievements? Very unfairly, maligning Congress.”
Any organisation that gets more than $40m a year of taxpayer money, has $20m unspent and has a stake in CentreCorp with assets of more than $50m absolutely needs to be held accountable.
It worries me that you fall back on excuses such as saying that poverty is the main driver of renal disease (and of course Congress can’t change that).
How about, a sedentary lifestyle, living in squalor, poor diet, alcohol and smoking, all of which Congress should be able to do something about.
But they haven’t despite all the millions.
A new approach is needed.
Take diabetes:
Although there are other factors, diabetes is a major cause of end stage renal disease. Many of us have watched the progression from diabetes to end stage over the years.
I’ve personally seen it a dozen times or more.
Uncontrolled diabetes is rampant in our community and the deaths are mounting.
Congress has largely failed to stem the tide so we need to try something else.
That is a medical approach.
Instead of expensively trying to change behaviour and failing we need new drugs and medical devices.
That means more money for research and probably less for Congress.
Of course that is confronting and will get the reaction we see from you.
But Aboriginal health is bigger than Congress and is the priority.
A medical approach has the potential to save many hundreds of millions of dollars and improve Aboriginal lives on a large scale.
That claim cannot be made about Congress.


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