I’m wondering if the Palliative Care Association could respond to …

Comment on Local palliative care lobby gets its way after long campaign by Anon.

I’m wondering if the Palliative Care Association could respond to my description of the palliative “care” my father received at the end of his life.
Specifically, is death by induced heart attack on the cards for our old folk and us at the new hospice?
If it is what is the level of information provided to relatives beforehand and is their consent sought?

Anon Also Commented

Local palliative care lobby gets its way after long campaign
Sandra Clyne: If the palliative care unit is engaged in practices that they absolutely cannot talk about then perhaps consideration should be given to either opening them to public discussion or discontinuing them.
To remain silent can only damage public perception of palliative care.

Local palliative care lobby gets its way after long campaign
In my opinion the continued silence from the Palliative Care Association is disturbing.
Surely the Chief Minister should also be concerned and encouraging the association to make a public statement.
After all the hospice is jointly funded by the Commonwealth ($5.3m) and Northern Territory Government ($1m).
Surely there are standards of openness, transparency, consent, rights of patients and relatives and legalities incumbent on all organisations and especially when we fund them.
The Palliative Care Association needs to generate a comprehensive and clear public statement that will reassure Territorians.
In my opinion if they cannot or will not do that then the Chief Minister must order an enquiry.

Local palliative care lobby gets its way after long campaign
@ Evelyn. Looks like we won’t be getting a response from the Palliative Care Association.
The problem I have with the palliative treatment my father received in a nursing home in Adelaide is he may have suffered unnecessarily by being deliberately dehydrated for several days before his death.
He could have been in great pain but unable to cry out because of the effects of dehydration on the elderly combined with morphine.
His was certainly not a quick death, the process lasted several days.
My strong preference would have been for him to be cared for until he died naturally, with pain killers and sedatives administered as needed.
That’s the manner of death that I believe is dignified.
To achieve that for him I would have needed to see through the facade of a feeble, semi-conscious old man attended to by palliative care workers, with soft music playing and a picture of my mother at the foot of his bed.

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